Lochlan was 5 months old when our nightmare began. His abdomen was very large, he was a very fussy baby, vomiting a lot and one day I noticed his entire abdomen was very firm to touch. He was diagnosed with Hepatoblastoma, a rare liver cancer, 2 days after I felt the tumor in his abdomen. A port was placed and chemotherapy started within 4 days of diagnosis. Our first hospital stay was 3 1/2 weeks! Lochlan completed 4 rounds of chemotherapy at Blank Childrens Hospital, he was in the hospital more than he was home.
A pediatric liver team in Omaha, NE was immediately contacted because of the high possibility of needing a complete liver transplant. His tumor responded well to the chemo and after his counts were high enough, he was able to be placed on the transplant list. We waited a very long 5 weeks for our phone call. On March 5, 2014 we got our call to head to Omaha. His transplant was completed early the next morning. Lochlan’s tumor was very large and split his liver in half, it also involved the vessels so he needed an entire liver. The liver would have to come from a child of similar size. We are forever so very grateful to the family that made the very difficult decision to give the gift of life to our amazing Super Lochlan. I only hope one day we can thank them in person. Lochlan’s transplant recovery was amazing!! After his very quick recovery, he completed 2 more rounds of chemotherapy at The Nebraska Medical Center in Omaha! After 2 1/2 months I was able to convince the liver team that Lochlan was doing amazing and they allowed us to return home just in time to celebrate Lochlan’s first birthday! We had a huge celebration thanks to some amazing friends, his party was unforgettable and more than we could have ever dreamed of!
We have had one heck of a year, but as we just passed his 18 month birthday we have so much to be thankful for. Lochlan is done with chemo, his port was removed, his transplant continues to do amazing, and Lochlan has made some amazing progress over the last 6 months of being home! The chemotherapy took a toll on our sweet boy and we have life long side effects to deal with but he has proven over and over that he is a FIGHTER!! His mild to moderate hearing loss ( nerve damage from chemo) makes communication one of his biggest struggles but definitely a hurdle we will conquer. He continues to depend on tube feelings for his nutrition and he has developed quite the list of allergies since transplant. After the year we have had this is all very manageable! I am very fortunate to get to stay home and attend to all his needs.
Lochlan has a very special guardian angel, his big sister Emma Kay Victoria to watch over him and at home he has 4 year old twin siblings, Keaton and Madelyn to help encourage him in his fight against cancer!
We have a lot of amazing medical staff, friends and family that have made it possible for us to fight this fight!